Whats The Significance Of Meeting Sos Extended Family
Whats The Significance Of Meeting Sos Extended Family – In 2008, representatives of parents from 18 countries gathered and laid the foundation for our work today. They drew up the “Rome Declaration” – ten requirements for premature babies and their families, which were then handed over to politicians in the European Parliament. Since then, it has been held annually to share ideas, experiences, education and training for representatives of parents’ organizations with the common goal of improving the situation in the field of maternal and newborn health, particularly around the world. has been holding meetings related to premature birth. What started as a small gathering has since grown into a summit with major organizations, experts and partners from around the world. At the Parent Organization Summit (POS), the Parent Advisory Board meets to discuss milestones for the coming year.
The Parent Summit, POS 2022 was undoubtedly an extraordinary meeting. After a break of almost 2.5 years caused by the COVID pandemic, the international community of preterm parents was finally able to meet again at the second POS in Freising, near Munich, Germany! We all remember three days of inspiring talks, meaningful project presentations, sharing experiences and the overwhelming joy of seeing good friends again and making new friends.
Whats The Significance Of Meeting Sos Extended Family
There is nothing more motivating than hearing the success story of someone else in the same situation as you. Therefore, it is important to share such success stories for POS so that we can learn from each other and get inspiration for our own projects. That’s why this year we were able to learn from the best examples of our network.
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POS isn’t just about expanding your network of support and like-minded people. We also want to learn from each other and empower each other. wishes to contribute to the professionalization of parent and patient organizations and to support them in their work as NGOs and in their exchanges with health professionals or political decision makers.
The awarding ceremony has become a tradition of the parents’ summit. This is an opportunity to recognize the excellent work of parent and patient organizations in our network. The pandemic has touched and affected us all, and all the projects awarded this year were related to the pandemic. This crisis seems to have catalyzed the search for solutions and given us urgency: now more than ever!
This year again, due to the long break between summits, we were honored to celebrate the work of four organizations instead of three.
We congratulate the winners and thank them for their commitment to improving newborn care. Some of you faced serious obstacles on the way, some of you were even attacked for your dedication, but you continued to fight for your goal. We would also like to thank each and every member of our community for their contribution and efforts in caring for our sick and premature babies. Together we can achieve a lot, as the past has shown us time and time again.
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Especially after this long hiatus, we realized again how important it is to share in our network and how much we encourage each other. We support each other, and opportunities in crisis and obstacles help us become stronger and better. We would like to thank all participants for their contributions to this successful meeting. We will remember this for a long time and look forward to the next POS in 2023.
After a 2-year pandemic-related hiatus, 31 parents from 27 countries gathered for the 2nd POS Parent Summit in Freising, Germany.
This year we participated in the summit of 35 major organizations from Europe and other countries. The three-day conference felt more like a big family reunion than anything else. All participants – from first-time visitors to those who were in Rome in 2008 – communicated openly, shared their lessons and best practices, and genuinely supported each other. International experts in preterm health, surveillance and neonatology were also on hand to update parenting organizations on the latest developments. conducted workshops with industry partners covering the art of negotiation, social media pitfalls, and analytical brief writing.
From left: Silke Mader (), Ilknur Okey (El Bebek Gul Bebek), Diana Gamulescu (Asociatia Prematurilor), Fabiana Bacchini (Canadian Foundation for Premature Babies), Corina Kruitoru (Asociatia Unu si Unu), Nicole Thiele () and Aurelia Abenstein ().
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The Parent Organization Summit (POS 2020) was filled with great achievements! This year we presented awards to not just three, but four great organizations! What they have achieved in their country for premature babies and their parents in 2020 is amazing! Hearty congratulations to El Bebek Gul Bebek (Turkey), Canadian Foundation for Premature Babies, Asociatia Unu si Unu (Romania)Asociatia Prematurilor, (Romania). More about the award.
Ornella Linchetto, World Health Organization (WHO), emphasized how important teamwork is to our common goal of improving the health of premature babies. Future change will require collaboration at all levels—in communities, national and global institutions. It is not surprising that the theme of cooperation accompanied us during the three days.
Gigi Honyongwa-Fernandez’s interactive presentation literally lifted us out of our chairs and forced us to experience the inextricable knot of hands and people. Some of us eventually untied the knot through communication and collaboration, and some of us just bonded through a funny experience. But all this prompted us to think about how we should work in the future. Now we know how the NICU Parent Network (USA) developed such a successful collaborative initiative to train NICU staff.
Partnerships are not only an important factor in improving the work of parenting organizations at the national level, but it is also essential that we work together globally to achieve our goal of improving health and social inequalities related to preterm birth worldwide. A year ago, we launched GLANCE, our global initiative for premature or sick newborns and their families. This summer we had an intensive and productive meeting with our founding committee and our new website was launched on World Prematurity Day. We’ve also launched a global call to action on newborn care, and we’re delighted that all of our parenting organizations took the opportunity to sign it at this year’s POS! Thank you so much for your support!
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When Dr. Takeshi Arimitsu talked about the achievements, challenges and opportunities in Japan, we realized how much we could gain by sharing our experiences globally. At Keio University School, Dr. Arimitsu saved a baby born at 25 weeks weighing 268 g, including the parents as much as possible. This extraordinary achievement raised many questions from all participants, which Dr. Arimitsu was happy to answer.
What happens to premature babies and their parents when they leave the intensive care unit? Dr Dieter Wolke, a professor at the University of Warwick, presented the latest research into the effects of prematurity on children and parents in adulthood. To demonstrate that there are many aspects that can positively influence the lives of preterm adults after discharge, such as responsive parenting and a focus on social integration and social skills. Professor Dr. Wolke had a knack for combining research facts with common sense and presenting them in a way that everyone could understand.
Our mainstream organizations also teach a lot. They all share the goal of giving every child the best start in life, but the situation in each country is different. We were happy to present best practices from national organizations, so we shared different approaches. Paula Guerra from Associação Portuguesa de Apoio ao Bebe Prematuro, the parent organization of the NGO, told us about her work in Portugal. It presented the thorough approach used by the NHRC to implement the European Standards for Neonatal Care (ESCNH) at the national level. What an impressive job!
Diana Gamulescu and Adina Klapa told us about their important work in Romania. The main organization of Asociatia Prematurilor has successfully built the first private monitoring center in its country – in two years it covered about 1000 families with free services. Blessings!
Real Life ‘meet The Parents’ Stories That Will Make You Laugh
Psychological training for parents of premature babies and health workers started by El Bebek Gul Bebek, Turkey. Early on in his project, Ilknur Okey realized that knowledge could reduce the stress experienced by parents of premature babies. So far, the education provided by El Bebek Gul Bebek has reached almost 800 parents of premature babies. This is the right approach!
Also offered workshops where large organizations could get useful information. For example, Prof. Dr. Dieter Wolke and Nicole Thiele conducted a workshop on writing analytical notes. Together with parents from all over Europe, they gave participants the opportunity to develop their own policies
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